Progressive Supranuclear Palsy (PSP) is a complex neurological condition that progressively affects movement, balance, vision, speech, and swallowing
PSP disease gets its full name because it progresses and gets worse over time (progressive); it damages the parts of the brain that control eye movements (supranuclear) and causes muscle weakness (palsy).
PSP belongs to a category of disorders called Atypical Parkinsonian Disorders.
Corticobasal Degeneration (CBD) is a progressive neurological condition. It presents complex challenges, not only to people living with a CBD diagnosis but also to their families, caregivers, and the healthcare professionals who support them
Our Helpline and Information Service offers information, practical and emotional support to everyone affected by PSP & CBD.
As a PSPA Helpline Volunteer, you can help provide essential support to individuals diagnosed with PSP & CBD, family members, carers and healthcare professionals. All from the comfort of your own home!
Often, the evening is the time when, particularly carers, have the chance to talk to someone. They may call with a specific question, but when you ask 'and how are you?', you are enabling them to open up and talk about how they are feeling. You can be that listening ear.
A few hours a month can make real difference. Our existing helpline team has formed a friendly, mutually supportive group but we need more volunteers to join them in this highly rewarding and worthwhile role.
- Offering emotional support and time to talk
- Explaining the range of support and services that PSPA can offer
- Keep up to date on all things relating to PSP & CBD and relevant information
- To ensure any information given is appropriate, accurate, timely and sensitively provided
- To complete records for each call
- To undertake the role in partnership with other volunteers and paid staff
- Access to a telephone line that can be used in private during allocated times
Skills
- Able to communicate sensitively with individuals from a wide range of backgrounds
- Understanding of health and social care landscape
- Understanding of terminal illness
- Effective communicator
- Reliable
- Understanding of dealing with sensitive and confidential information
- Excellent listening skills
We offer a comprehensive learning package that can be done in your own time and covers all aspects of the role. A visit to our offices in Milton Keynes as a final training day completes the process. This is also an opportunity to meet and get to know members of staff and increase your own knowledge and understanding of PSP and CBD and the wider work of PSPA.
Details
- Accessibility
- Age restrictions
over 18 - DBS check required
- Equal Opportunities Policy
- Expenses reimbursed
- Health and Safety Policy
- Ongoing support
- Training provided
- Volunteer induction
- Volunteer Policy
- Volunteers covered by insurance
- Written role description
When can I volunteer?
Start Date: 08/08/2023
End Date: 18/12/2024
| Mon | Tue | Wed | Thu | Fri | Sat | Sun | |
|---|---|---|---|---|---|---|---|
| Morning | Yes | Yes | Yes | Yes | Yes | Yes | Yes |
| Afternoon | Yes | Yes | Yes | Yes | Yes | Yes | Yes |
| Evening | Yes | Yes | Yes | Yes | Yes | Yes | Yes |
Location
This opportunity can be carried out whilst working from home.
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