Support Group Helper

Progressive Supranuclear Palsy (PSP) is a complex neurological condition that progressively affects movement, balance, vision, speech, and swallowing . PSP disease gets its full name because it progresses and gets worse over time (progressive); it damages the parts of the brain that control eye movements (supranuclear) and causes muscle weakness (palsy). PSP belongs to a category of disorders called Atypical Parkinsonian Disorders. 

 Corticobasal Degeneration (CBD) is a progressive neurological condition. It presents complex challenges, not only to people living with a CBD diagnosis but also to their families, caregivers, and the healthcare professionals who support them. 

Our Support Group Volunteers provide a welcoming and friendly environment for everyone affected by PSP & CBD to meet up and share experiences, information and friendship 

Our support groups are part of PSPA's invaluable support services. They make a huge difference to those people affected by PSP & CBD.

Due to the success of these groups, some of our group coordinators are finding they need some extra support with running the group.

Tasks will vary from group to group but could include:

• Assisting in organising meetings
• Preparing and distributing refreshments
• Meeting and greeting people at each meeting
• Supporting the group coordinator
  

Skills

• Able to make introductions at meetings
• Good communication skills and diplomacy
• Ability to support and motivate others
• Experience of running meetings
• Reliability
• Warm, caring manner
• Good organisational skills
• Ability to motivate others and involve them in the work of the group
• The ability to make cakes could also be very useful - but definitely not essential

We provide a comprehensive welcome package with all the resources and information you need to cover all aspects or the role. A staff member will support you at your first meeting and provide ongoing support. There are also chances to further development through annual workshops and other PSPA events.